It’s Time…


A friend of mine who writes her own blog about her bikes, trips and life experiences just posted after a long hiatus.  Why?  Well, like me, she didn’t have much to post about bike, trips but she did about life.  Hence, why I haven’t posted anything in months.  You see I feel if I have nothing pertaining to riding why write?  This post is an update as to why I am NOT riding.  Read along or “X”out if you choose.

In a nut shell I am bike-less.  Sold my bikes because I can’t ride.  Sold my bikes because it’s too depressing to be that aware I CAN NOT ride.

Riding requires eye sight.  After numerous battles since 2014, divorce, motorcycle accident with fractured right tibia in 2015, hit with Graves Disease Sept 2016, “treated” the graves with radioactive iodine in December 2016, hit with 1 in a million thyroid eye disease  (TED)in February 2017 and now?  The thyroid eye disease has gotten so bad I have had at thyroidectomy, June 2018, Left eye orbital decompression surgery July 2018 and then right eye orbital decompression surgery Sept 13 2018.  Also found out recently that my pigment epithelial detachment (PED), diagnosed in 2007, just bad luck to have it, has moved up towards my retina.

Left eye post op day 6

 

Two competing issues.  I high dose steroids for Thyroid Eye Disease TED), not bulging eye one . but the use steroids made my detachment move.  Down goes the steroids in come inflammation in my right eye.  Bottom line I can not see well enough to work or drive consistently.  Due to high dose use of steroids I also have steroids induced myopathy.  Severe weakness and get out of breath easily.

So, you see…when for years I took vacations, took adventures on my bikes, explored new places…that was living.  Now, I spend almost everyday off at the specialist office only to hear surgery is a defensive measure, there is no cure for TED and my endocrinologist saying I an in survival mode, just doesn’t cut it when it comes to riding a bike.

I dream bout riding again aimlessly and being back to me.  I have no idea why my body has given out and my eyes.  I have no idea what the future has in-store for me. Will I continue to see something?  Will I be able to work?  Will I be disabled?  Dreading that possible reality.

I just don’t know nor do the specialists.  So, there you have it.  Silence broken…TMI, probably, getting re married though Sept 28th.  I will look like Pam beat me up being only 15 days pot op from eyed surgery #2.  She’s a saint, has to be since 2015 I been really in and out of commission up until present.   What will we ever do if I actually get healthy?

That’s about it.  Everyone says be patient…even though there isn’t a cure for either TED or PED, be patient.  No prognostication.  Be patient.  So, I will.  I have no choice.  I am sidelined from work and as I be patient I go to the ocean a lot to swim and try to relax.  Sounds like what a life but when your vision is so blurry you can’t even see the words as you type like I am here…it’s bit unnerving and scary.  Love spell check these days.

If you read this thanks and if not totally understand.  If there are grammatical mstakes or missing words, well…I did my best.

 

 

 

 

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Good Bye…


It’s been awhile since I have posted anything here.  I guess it’s because I have been frustrated.  Been sick since October, but really feels like I have been knocked out since my motorcycle accident back in Oct. 2015.  Seems my body doesn’t like the month of October.  I went through a thyroid storm.  Diagnosed with Graves Disease.  No big deal, millions get this right?  Well, of course it complicated my diabetes.  Sugars were through the roof for months.  Still are high and I am learning my insulin pump.  I have a dead right shoulder.  Waiting for a MRI to see if I have a tear or “just” a frozen shoulder.  My eyes have been puffy for over a month, creating blurred vision at times.  No diagnosis yet and I have seen many specialists.

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Continue reading “Good Bye…”

American Work Force 101


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Since I can’t ride I have too much on my hands to pay attention to very controversial topics.

I am hoping to get a few weeks away on holiday this year. Response I get from my colleagues. “What? You’re dreaming, no one gets more than a week at a time and if you get that you’re lucky.”

I moved back to the USA in 2015 after living in BC, Canada near Vancouver for 18 years. I am American born, NY to be exact and thought how hard wold it be to re-acclimate to my home country? I was in for such culture shock. Moving back to a country that does not share the fundamental values of most Western countries, including my Canada was very overwhelming. Depressing too.

What fundamental values? I will focus on healthcare & vacation time plus family time.

I have had the “privilege” to experience USA healthcare practically from the moment I landed on Long Island. Dreaded motorcycle accident. Broken tibia with a recovery timeline of 7 months.

Ambulance brought me to the nearest trauma hospital 8.9 miles away. Paramedic didn’t put me in a c-spine collar nor could he get the pulse ox to read my vitals yet he somehow told the hospital over the radio what my vitals were. Hmmm…how did he do that? Hospital was great. They triage me right away. Very thorough diagnostics. I was thankful until I received medical bills for the only on call orthopedist and radiologist.

You see in the USA doctors can work in a hospital that takes your insurance but they do not have to by law and bill separately. Really? You are in a trauma situation and I was told from my insurance company I should have asked if the doctors took my insurance. If they were in my “network”. Since ambulance companies are private they can charge whatever they want. I was charged $125 for 8.9 miles plus an ACLS fee totaling $2900. My partner who shared the accident was charged $1200 for sitting on a tool box in the same ambulance as me. $4100 to transport us to get care after an accident. This is when I realized I wasn’t in Canada anymore.

“Health care in the United States is a $3 trillion industry, accounting for nearly 18 percent of the gross domestic product, up from 14 percent in 2000. Health care inflation outpaces inflation in other markets. Federal, state and local governments share the financial burden of health care with employers and individuals. In the aggregate, states spent $199.2 billion of their own resources in 2013 on Medicaid health services. Medicaid spending accounted for 16.9 percent of all state-generated funds —4.7 percent more than in 2000.

But the return on investment has been disappointing in some areas. The U.S. spends twice as much on health care per capita compared to other industrialized nations but isn’t the healthiest nation, by far. Americans have shorter lives, higher infant mortality rates, higher incidence of chronic diseases and more than many other high-income nations.”(http://www.ncsl.org/research/health/cost-and-quality.aspx)

Healthcare is seen as profit making. An ED doctor told me he never knows if his patient is covered by insurance. He doesn’t want to know so he can actually treat his patient not worrying about possible personal expenses his patient may incur. Not only is it for profit, with some exceptions like the VA, you need an advisor to choose your insurance coverage. I was asked by my insurance company when I signed up, “So, how do you think you will feel this year? Do you think you will be seeing a primary physician a lot? Or do you think you might be hospitalized?” My body is a crap shoot?

Main articles: Health insurance and Health insurance in the United States

More competition is how this country rolls. President elect Trump wants more competition because he believes this will lower costs? Costs to whom? Insurance companies according to me have it made. They make billions because when you are covered there are deductibles to be met, for me $3000, out of pocket expenses, for me and my non-married partner $9000. I am still confused why my insurance company pays for some things and not for other. The other surprise to me is how much Federal tax I pay, not anymore than I did in Canada (see link below) and I had full medical coverage without networks. Coverage supported financially through Provincial and Federal taxation. I actually netted more money in Canada than I do here. No pensions anymore as well in the USA.

I have diabetes and so far from June, 2016 I have spent over $2000 on top of my healthcare premiums to take care of myself. Things got more complicated with a new diagnosis autoimmune disease as well. I am not even close to my deductible because not everything I have paid for goes towards that amount and then there is out-of-pocket. Who the hell knows the difference? In the USA you HAVE to be married if your gay to not get dinged covering a dependent. Added to my pay very 2 months is $1200 for my partner. There is no such thing as common law that is recognized by the IRS.

OK, so you get my point about the USA healthcare system. It’s broken more than Canada yet I always hear “we” have the best system, people from all over the world come here to get care. Hmmm, really?

In the USA families hardly get anytime away from work to have their children. I think it’s 12 weeks now if you are employed. In Canada family is seen as a priority. You can take up to a year off when you adopt or have a child. It is believed in Canada the more time the parents have with a new-born the better the bond. Holidays away from work are emphasized. Compensation for work is emphasized. Comparing my jobs between both countries the pressure to work all the time in the USA allows time to only dream about a lengthy vacation.

I have been told go back to Canada if you don’t like living in the USA. Part of me wants to, a huge part but I love my American partner and my family. I have dual citizenship so I can go back. Like everything else it’s complicated and my bond to my partner and family is greater than the country I live in. I just wish or dream that the US would be more humble and acknowledge other healthcare systems & family time are about sharing the costs and actually work.

Everything you read here is my opinion and even my million dollar brother’s wife with “great” coverage complains about the costs of healthcare. Most do in the country but nothing is done to make life, health something to not worry about because the pharmaceutical and insurance companies run the USA system. Check out this site…for tax info. Do Canadians really pay more taxes than Americans?

Don’t get me started on the mortgages here either. Another very confusing system. Oh since I appear to be bashing the USA healthcare system…I am seen as not Patriotic.

 

 

I have been called strong


I miss my bike.  I really do.  I can’t ride my F8 or any bike for that matter.

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This was my last and almost first real ride since I busted my tibia.  About a month ago I went out and it was like a breath of fresh air.  My last 2 years have been challenging to say the least.  Someone sent me message about how “strong” I have been throughout these years.

Multi-Ethnic Group Of Diverse People Holding Letters That Form D

My diabetes has gone from Type II to what some call Type 1.5.  Sugars out of control, complicated now by thyroid issues.  I am weak, I tremor, I am exhausted all the time and I can’t ride nor work all my on call shifts.

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The only good thing with an over active thyroid is loosing weight.  So, since I have moved back to the USA from Canada I have gotten into a motorcycle accident, broke my tibia, was out of commission for 7 months, my diabetes has progressed to the point I may need an insulin pump and now my thyroid is out of control.  All of my issues can be treated.  Good news eh?

Treated with drugs.  More drugs and always paying attention to my body.  Sounds easy…to me it’s annoying.  Am I strong?  I feel overwhelmed and week again.  I just want to catch a break, no, not literally.

I have the most incredible partner who inherited  a partner who continuously gets sicker and sicker.  sick2

I read all those great FB pages and see so many out riding old and new bikes.  Having the adventures of their lives or just riding for the enjoyment.

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I am happy riding…yet I feel for now this is another loss.  Anyone who rides understands what two wheels feels like.

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I dream about the 1200 I trashed, I dream about being healthy.  Not pitying myself, I just want normalcy.  Every time I look around a corner there seems to be a surprise not in a good way.  I am sick.  I look well but I am ill.  I am trying to look forward but I always seem to think about BC, Canada.

Our new President was elected.  Perhaps I am sick over that too?  cropped-voting-fraud2

I guess now everyone knows who I voted for and why I think about canada-cool

I will end this by promising myself to get the medical help I need and comply.  Now, I also have to figure out a way to do my job.  24 hr shifts between 14-18 times a month.  In the  mean while I will try to be a good partner and will dream about my present bikefullsizeoutput_100a

and the new bikes coming out.  😉

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It’s been awhile…


I haven’t posted for a while mainly because I am still not riding.  Into my 8th month of recovery from my motorcycle accident back in October 2015, I am regaining strength and flexibility day by day.  Yet, as hard as I have worked especially since March 21st, 2016-the day I became weight-bearing, I feel I have such a long way to go.

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Snap

Continue reading “It’s been awhile…”

50 is just a number & Helicopter


April 5 – 6 2016

In February I turned 50, half a century old.  I remember when I was younger thinking 50 was old, yet when I look in a mirror…I don’t see an old woman.  Weird, I see someone who has been through many trials and tribulations but not weathered, not old, just living.

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Ready for take off

Continue reading “50 is just a number & Helicopter”

Healing and more changes


Recap…this blog has been a bit sleepy because well?  I haven’t been doing much since October 17th, 2015 except trying to heal from my crash.

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A DOGS love & the pain saying good bye


DOGS POST

One thing I find interesting?  ADV riders seem to have in common is the love for their pets and life.  I have no real tangible evidence but I would say many of us who ride have dogs.  Having said that want to find my soft spot?  Loving my dogs and then having to say good bye. I work in an industry where death and dying happens everyday.  Human beings I mean.  I cope with that professionally but I feel that perhaps witnessing all that pain and suffering comes out in me when I lose a dog.

Over the last 3 years I find myself grieving the loss of a dog I cherished.  In June 2014 it was my crazy Beagle, Cruizer.  Continue reading “A DOGS love & the pain saying good bye”

Even Charley has accidents…


February 17 2016

I just heard yesterday that Charley Boorman was in a motorcycle accident in Portugal.  He broke his left tibia, fibula and right ankle requiring surgery. 

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Charley Boorman’s Twitter pic

Here is a tweet:

CB had accident today in Portugal @ Global launch of Triumph Explorer

I bet he’s home by now and beginning his road to recovery.  I can relate as my road to recovery just got longer even though my cast was removed on Feb. 12.

Continue reading “Even Charley has accidents…”

Taking longer than I thought


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Need more bone to close the gaps

After 3 months of complying to the strict “rules” set out by my orthopedist-no weight bearing, continue full length cast “prison” therapy I was told on January 12th, 2015 that my leg needs at least another month.  Same therapy.  I will continue to comply but it’s tough when you’re not able to drive, have no income because I can’t work and still completely dependent on others.  Momentary lapse in my life.  Only 4 months plus rehab I should be feeling lucky.  I do in some regards but can’t help to feel frustrated. Continue reading “Taking longer than I thought”

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